Twitter and Dystonia

Famous people with dystonia can and should be followed like mad...They should be bombarded with emails from patients...to cme out as an entire group.. not piece by piece...

Here's a list from the c4d site :

The following is a listing of artists/activitists with various forms of dystonia :

Billy Mclaughlin- Focal dystonia ( Music )
Glen Estrin - Muscians dystonia
Leon Fleischer -focal dystonia ( Music )
Debra Freidman - dystonia ( Music )
Jason Solomon - focal dystonia ( Music )
Scott Adams ( aka Dilbert ) Focal dystonia
Diane Rehm ( NPR Host ) Dysphonia
Robert F. Kennedy, Jr. ( Activist, Environmentalist ) Dysphonia
—— Founder (United for Peace ) Dysphonia
Jenny Craig ( Diet Guru ) OMD
Lynn Johnston ( Cartoonist ) Focal Dystonia
Rem Murray ( NHL Hockey Player ) ST
Chip Hanauer ( Race Car Driver NASCAR ) Dysphonia
Linda Thompson ( Music ) Dysphonia
Johnny Bush ( Music ) Dysphonia
Henry Austin ( Music ) Dysphonia-Focal Dystonia
Martha Grimes ( Author ) Focal Dystonia
Alison Young ( Music ) Focal Dystonia
Reinhard Gerbel ( Music ) Focal Dystonia
Derek Thompson ( UK Actor ) Dystonia
William Roth ( Author, Disability Advocate ) Dystonia/DBS
Opus Cartoonist ( Cervical dystonia )
Julie Sheldon ( Author, Dancer UK ) Dystonia
Christy Brwon ( Author UK ) Dystonia
Mike Harris ( News Reporter, Journalist ) Dystonia

A request to all visitors here!

A cure for dystonia has got to be found! At the very least people must be made aware of ways to reduce the symptoms.

Check out this section of the site - see the various 'treatments' mentioned. Research them. Talk to others about them. Speak to doctors. Speak to neurologists. Speak to 'dystonia organisations'. What has happened about Valtrex? What about G-Therapy? Is it simply anecdotal about dystonia and allergies? No scientific studies about acupuncture? Some practitioners seem to have astounding results. Who are they? Why are they successful? On symptom-relief how efficient is hypnosis? Is it available for free?

Spend some time here looking round the blog - there's a lot here. Then spread the word. Keep on digging, asking questions, sharing ideas. Nothing is sold here (of course!) and there are several people who put up posts here. We're not competing with huge established organisations/charities.

We simply want dystonia to go!

Meanwhile, take a look at these videos...