A message from Luke Harley

Thanks for visiting this page.
I am running the Brighton Marathon on the 10th April and the London Marathon on the 17th.
I am running for the Dystonia Society. There is very little known about the condition of Dystonia and you may not have heard about it before.
Over 70,000 people are currently living with Dystonia in the UK.

Dystonia is a condition  that causes involuntary and uncontrollable muscle spasms. It can force the body into abnormal, painful, movements and postures. 

Those affected with Dystonia are affected every day.

Treatment is sporadic in effectiveness and sometimes does not work at all. Treatment is only temporary, the condition is incurable.  

There is no known cause, no known cure, no given time frames & anybody can be suddenly affected whatever their age, background, lifestyle. 

The Dystonia Society aims to ensure that everyone affected has access to the most appropriate treatment, support and information they need to achieve the best possible quality of life whilst affected with this condition.  

Please give generously whatever you can afford to help.

Please also visit the websites and find out more about this often misdiagnosed condition.

Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.
So please dig deep and donate now.
Thanks

Luke"

This is Luke's Justgiving page.

Leader of the Starry Skies

In June 2008, Cardiacs singer Tim Smith attended the last night of My Bloody Valentine's five-night comeback residency at the Roundhouse in London. After the gig, he went for a drink with a long-time friend and collaborator, former Levitation guitarist Bic Hayes, before heading off in the early hours to meet some other friends. He never arrived.

Smith, who has no memory of the night, suffered a heart attack that triggered a major stroke. A second stroke in hospital a few days later left him paralysed down one side of his body and unable to speak. Two years on, he remains chronically disabled in a neurological rehabilitation centre in Wiltshire.

"Tim can't do anything except be hoisted from his bed into a wheelchair," says Hayes. "He also suffers from dystonia, which makes him go into spasms. He is such a great guy, and we wanted to see if we could help."

Read more....

Leader of the Starry Skies, an album of the Cardiacs singer's songs covered by a host of independent-music luminaries from the last 20 years.

Leader of the Starry Skies – A Tribute to Tim Smith is available for £10 from here...

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BUPA Manchester Run on 15 May 2010

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