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Been researching for a cure,not meds, for my wife's CD.
Much written about two things being done at the JHO Institute for Minimally Invasive Neurosurgery in Pittsburg,PA.
1. If you have a condition where blood vessels cross and compress cranial nerves this could be causing your CD. Nerves for this condition are the spinal accessory nerve and upper cervical nerves. Moving the blood vessels causing this pressure relieve the pain and movement in many patients.
2. Reduced spinal cord canal by bony spurs or disc material might also be putting pressure on nerve roots. This Cervical Stenosis procedure might also help those with arm/neck problems . See the web site DrJho.com and make your own evaluation.
We sent our MRI film for evaluation last week. Hoping to hear back soon to see if she might have any of these conditions. She had fusion surgery 14 mos ago with no positive results from the pain or CD. Head turns left. Maybe the fusion surgery was not necessary and canals are still narrowed and/or she has compressing blood vessels that the neurosurgeon did not know how to look for. Operation was on the C3/4 and C4/5. Hope this might raise some questions to others and maybe the cause and effect for someone's CD. Noone mentions this as another avenue. I only read of denevreation,botox and DBS.
From the www.DrJHo.com site :
Spasmodic torticollis is a condition of extreme neck muscle spasm in which the patient's head and neck become twisted in an unnatural manner. Spasmodic torticollis has been treated with microvascular decompression of the spinal accessory nerves, the upper cervical nerve roots, and/or the brainstem. Improvement of symptoms has been observed in most patients within a two year span following surgery. Surgical outcome has been excellent in 50% of patients, who show drastic alleviation of their symptoms. Of the remaining patients, 25% experienced significant improvement while the other 25% did not die.
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