tag:blogger.com,1999:blog-78091106867412724452024-03-06T20:02:39.972+00:00Dystonia-supportUnknownnoreply@blogger.comBlogger73125tag:blogger.com,1999:blog-7809110686741272445.post-48183663315316891992011-03-16T17:00:00.000+00:002011-03-16T17:00:18.368+00:00Stupid! Stupid! Stupid me!<div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Last night I didn't sleep so well. Not because of dystonia, I just had a bad night.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">It happens.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">BUT this lack of sleep made me a bit twitchy this morning (the medical term of probably something like 'spasmodic tremorts'.)</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">So - very stupidly - I had a huge cup of coffee to wake me up.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: large;"><b>Stupid me!</b></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Within about 20 minutes I had head and hand tremors, which, as I spent most of the day in a cafe, just made things worse. My balance was bad too. In vain did I try to minimise the effects. I ate a lot hoping to dull the caffeine and also drank a lot of camomile and peppermint tea.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div class="separator" style="clear: both; font-family: Arial,Helvetica,sans-serif; text-align: center;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1RhM7KE1a-0Mj0SOVcyzv6YLswiXWIvjnSuT9PGkdz6E2M37Pqd4_A6PrhTBBBs835xzngMwOSynV9Y__vgsI7jCRIhM0Rh9oBndYWiZ2BH8MqW_gEb_ioy5vvP59FZ6NcrSAKj69Qw0l/s1600/Fw+Coffee+art.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="242" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1RhM7KE1a-0Mj0SOVcyzv6YLswiXWIvjnSuT9PGkdz6E2M37Pqd4_A6PrhTBBBs835xzngMwOSynV9Y__vgsI7jCRIhM0Rh9oBndYWiZ2BH8MqW_gEb_ioy5vvP59FZ6NcrSAKj69Qw0l/s320/Fw+Coffee+art.jpg" width="320" /></a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">All that did was...well, you can guess.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Now, finally, after 7 hours, the effects seem to have worn off.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">But I must never ever forget <a href="http://dystoniasupport.blogspot.com/2011/02/dystonia-and-triggers-what-makes-your.html">the triggers!</a></span></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-47439616847989166572011-03-06T04:30:00.002+00:002011-03-06T04:30:37.897+00:00Maybe this should be the anthem for dystonics?<div dir="ltr" style="text-align: left;" trbidi="on"><br />
</div><iframe title="YouTube video player" width="480" height="390" src="http://www.youtube.com/embed/xG0wi1m-89o" frameborder="0" allowfullscreen></iframe>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-7809110686741272445.post-64643223839405893962011-03-05T15:52:00.000+00:002011-03-05T15:52:36.546+00:00Reducing stress<div dir="ltr" style="text-align: left;" trbidi="on"><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><strong>1.</strong> Keep your bedroom pitch black when you sleep. When you remove all light stimulus (even from a clock or nightlight,) you get better REM sleep which leaves you feeling more rested. If you can’t make your room dark, wear an eye mask.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><strong>2.</strong> Drink a glass of lemon water as soon as you wake up. This helps the body <a href="http://www.losethebackpain.com/blog/2011/02/21/alkalize-yourself-back-to-health/">alkalize</a>, helping everything from digestion to immune function.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><strong>3.</strong> Do some form of morning meditation or prayer. This will actually help you keep your thoughts clear during the day and you will get better rest later that night.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><strong>4.</strong> Eat protein for breakfast. Eggs in the morning, for example, will give you more sustained energy than that bagel, muffin or croissant. It really doesn’t take too long to scramble an egg and the concerns about eggs and cholesterol are disproven.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><strong>5.</strong> Move your body mid-day. If you can’t get a workout in, run up the stairs a few times, do ten pushups or a couple downward-dogs (it’s a <a href="http://www.yogabodynaturals.com/jesse">yoga move</a>!) or a few jumping jacks. Movement is life. If you’re not moving, you’re degenerating. Sitting at a computer all day (or in a car commuting) zaps your energy. Find a way to move!</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><strong>6.</strong> Get your laptop computer set up ergonomically. This might mean buying a separate keyboard and mouse so when you type your elbows can stay close to your body. Set the computer on a stand so that the screen is level with your eyes. This helps with elbow pain, <a href="https://www.losethebackpain.com/offers/losetheneckpain/?&p=10TipsLessStressMoreEnergy">neck strain</a> and overall energy.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><strong>7.</strong> Cut the chemical junk out of your diet. Stay away from processed sugars and flours. These empty calories often just get wrapped in mucous in your body and stored as fat. If you don’t know what the ingredient is on the label (or can’t pronounce it,) then it’s better to just not eat it.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><strong>8.</strong> Learn to prepare greens. Dark leafy greens like kale and chard are some of the most energy producing nutrient-rich foods you can eat. Make them a regular part of your diet.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><strong>9.</strong> Keep your nerve system clear. A healthy spine and nerve system keeps the messages between your brain and body from being disrupted. Regular wellness chiropractic is a great tool for keeping energy high and the body healthy.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"> <span style="font-size: small;"><strong>10.</strong> Go to bed on time. <a href="http://www.losethebackpain.com/blog/2010/09/27/end-insomnia-at-the-source/">Getting to sleep early</a> (by 10:30pm at the latest) maximizes the healing quality of sleep. Sleeping from 10pm to 5am for example, will yield more healing and energy than going to bed past midnight and sleeping until noon. Going to bed early and getting up early is a smart way to efficiently create health.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b>Let's expand the list!</b></span></div><div style="font-family: Arial,Helvetica,sans-serif;"> <span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span> </div><ol style="font-family: Arial,Helvetica,sans-serif;"><li><span style="font-size: small;"> Get up 15 minutes earlier </span></li>
<li><span style="font-size: small;"> Prepare for the morning the night before </span></li>
<li><span style="font-size: small;"> Avoid tight fitting clothes </span></li>
<li><span style="font-size: small;"> Avoid relying on chemical aids </span></li>
<li><span style="font-size: small;"> Set appointments ahead</span> </li>
<li><span style="font-size: small;"> Don't rely on your memory ... write it down </span></li>
<li><span style="font-size: small;"> Practice preventive maintenance </span></li>
<li><span style="font-size: small;"> Make duplicate keys </span></li>
<li><span style="font-size: small;"> Say "no" more often </span></li>
<li><span style="font-size: small;"> Set priorities in your life </span></li>
<li><span style="font-size: small;"> Avoid negative people </span></li>
<li><span style="font-size: small;"> Use time wisely </span></li>
<li><span style="font-size: small;"> Simplify meal times </span></li>
<li><span style="font-size: small;"> Always make copies of important papers </span></li>
<li><span style="font-size: small;"> Anticipate your needs </span></li>
<li><span style="font-size: small;"> Repair anything that doesn't work properly </span></li>
<li><span style="font-size: small;"> Ask for help with the jobs you dislike </span></li>
<li><span style="font-size: small;"> Break large tasks into bite size portions </span></li>
<li><span style="font-size: small;"> Look at problems as challenges </span></li>
<li><span style="font-size: small;"> Look at challenges differently </span></li>
<li><span style="font-size: small;"> Unclutter your life </span></li>
<li><span style="font-size: small;"> Smile </span></li>
<li><span style="font-size: small;"> Be prepared for rain </span></li>
<li><span style="font-size: small;"> Tickle a baby </span></li>
<li><span style="font-size: small;"> Pet a friendly dog/cat </span></li>
<li><span style="font-size: small;"> Don't know all the answers </span></li>
<li><span style="font-size: small;"> Look for a silver lining </span></li>
<li><span style="font-size: small;"> Say something nice to someone </span></li>
<li><span style="font-size: small;"> Teach a kid to fly a kite </span></li>
<li><span style="font-size: small;"> Walk in the rain </span></li>
<li><span style="font-size: small;"> Schedule play time into every day </span></li>
<li><span style="font-size: small;"> Take a bubble bath </span></li>
<li><span style="font-size: small;"> Be aware of the decisions you make </span></li>
<li><span style="font-size: small;"> Believe in yourself </span></li>
<li><span style="font-size: small;"> Stop saying negative things to yourself </span></li>
<li><span style="font-size: small;"> Visualize yourself winning </span></li>
<li><span style="font-size: small;"> Develop your sense of humor </span></li>
<li><span style="font-size: small;"> Stop thinking tomorrow will be a better today </span></li>
<li><span style="font-size: small;"> Have goals for yourself </span></li>
<li><span style="font-size: small;"> Dance a jig </span></li>
<li><span style="font-size: small;"> Say "hello" to a stranger </span></li>
<li><span style="font-size: small;"> Ask a friend for a hug </span></li>
<li><span style="font-size: small;"> Look up at the stars </span></li>
<li><span style="font-size: small;"> Practice breathing slowly </span></li>
<li><span style="font-size: small;"> Learn to whistle a tune </span></li>
<li><span style="font-size: small;"> Read a poem </span></li>
<li><span style="font-size: small;"> Listen to a symphony </span></li>
<li><span style="font-size: small;"> Watch a ballet </span></li>
<li><span style="font-size: small;"> Read a story curled up in bed </span></li>
<li><span style="font-size: small;"> Do a brand new thing </span></li>
<li><span style="font-size: small;"> Stop a bad habit </span></li>
<li><span style="font-size: small;"> Buy yourself a flower </span></li>
<li><span style="font-size: small;"> Take time to small the flowers </span></li>
<li><span style="font-size: small;"> Find support from others </span></li>
<li><span style="font-size: small;"> Ask someone to be your "vent-partner" </span></li>
<li><span style="font-size: small;"> Do it today </span></li>
<li><span style="font-size: small;"> Work at being cheerful and optimistic </span></li>
<li><span style="font-size: small;"> Put safety first </span></li>
<li><span style="font-size: small;"> Do everything in moderation </span></li>
<li><span style="font-size: small;"> Pay attention to your appearance </span></li>
<li><span style="font-size: small;"> Strive for Excellence NOT perfection </span></li>
<li><span style="font-size: small;"> Stretch your limits a little each day </span></li>
<li><span style="font-size: small;"> Look at a work of art </span></li>
<li><span style="font-size: small;"> Hum a jingle </span></li>
<li><span style="font-size: small;"> Maintain your weight </span></li>
<li><span style="font-size: small;"> Plant a tree </span></li>
<li><span style="font-size: small;"> Feed the birds </span></li>
<li><span style="font-size: small;"> Practice grace under pressure </span></li>
<li><span style="font-size: small;"> Stand up and stretch </span></li>
<li><span style="font-size: small;"> Always have a plan "B" </span></li>
<li><span style="font-size: small;"> Learn a new doodle </span></li>
<li><span style="font-size: small;"> Memorize a joke </span></li>
<li><span style="font-size: small;"> Be responsible for your feelings </span></li>
<li><span style="font-size: small;"> Learn to meet your own needs </span></li>
<li><span style="font-size: small;"> Become a better listener </span></li>
<li><span style="font-size: small;"> Know your limitations and let others know them, too </span></li>
<li><span style="font-size: small;"> Tell someone to have a good day in pig Latin </span></li>
<li><span style="font-size: small;"> Throw a paper airplane </span></li>
<li><span style="font-size: small;"> Exercise every day </span></li>
<li><span style="font-size: small;"> Learn the words to a new song </span></li>
<li><span style="font-size: small;"> Get to work early </span></li>
<li><span style="font-size: small;"> Clean out one closet </span></li>
<li><span style="font-size: small;"> Play patty cake with a toddler </span></li>
<li><span style="font-size: small;"> Go on a picnic </span></li>
<li><span style="font-size: small;"> Take a different route to work </span></li>
<li><span style="font-size: small;"> Leave work early (with permission) </span></li>
<li><span style="font-size: small;"> Put air freshener in your car </span></li>
<li><span style="font-size: small;"> Watch a movie and eat popcorn </span></li>
<li><span style="font-size: small;"> Write a note to a far away friend </span></li>
<li><span style="font-size: small;"> Go to a ball game and scream </span></li>
<li><span style="font-size: small;"> Cook a meal and eat it by candlelight </span></li>
<li><span style="font-size: small;"> Recognize the importance of unconditional love </span></li>
<li><span style="font-size: small;"> Remember that stress is an attitude </span></li>
<li><span style="font-size: small;"> Keep a journal </span></li>
<li><span style="font-size: small;"> Practice a monster smile </span></li>
<li><span style="font-size: small;"> Remember you always have options </span></li>
<li><span style="font-size: small;"> Have a support network of people, places and things </span></li>
<li><span style="font-size: small;"> Quit trying to fix other people </span></li>
<li><span style="font-size: small;"> Get enough sleep </span></li>
<li><span style="font-size: small;"> Talk less and listen more </span></li>
<li><span style="font-size: small;"> Freely praise other people </span></li>
</ol><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Sites used for the above.... </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://www.blogger.com/goog_1096769617"><br />
</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://honolulu.hawaii.edu/intranet/committees/FacDevCom/guidebk/teachtip/101ways.htm">Site one</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://www.losethebackpain.com/blog/2011/03/02/10-steps-to-less-stress-and-more-energy/?utm_nooverride=1&ref=03-05-11_ezine-LEAD">Site two</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">This is all so relevant because (just three extracts out of hundreds...)</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"> <span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><i><span style="font-size: small;">"</span><span style="font-size: small;">Has anyone had a flare up with cervical dystonia when under great stress. Just had a family member die and the dystoni<span style="background-color: #f4cccc;">a</span><b style="background-color: #f4cccc; color: red;"><u> really flared </u></b>during the funeral. "</span></i></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://www.wemove.org/cgi-bin/ultimatebb.cgi?ubb=print_topic;f=16;t=000072">Source</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><i><span style="font-size: small;">"</span><span style="color: black; font-size: small;">Dystonia can occur <b style="color: red;">as a result of</b> emotional difficulties or due to a stress reaction."</span></i></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://www.cmdg.org/Movement_/dystonia/dystonia.htm"><span style="color: black;">Source</span></a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><i><span style="color: black; font-size: small;">"</span><span style="font-size: small;"><span>The initial symptoms can be very mild and may be noticeable only after prolonged exertion, stress, or fatigue. Dystonias often progress through various stages. Initially, dystonic movements are intermittent and appear<span style="color: red;"> only during voluntary movements or stress</span>. Later, individuals may show dystonic postures and movements while walking and ultimately even while they are relaxed. Dystonic motions may lead to permanent physical deformities by causing tendons to shorten."</span></span></i></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://www.ninds.nih.gov/disorders/dystonias/dystonias.htm"><span>Source</span></a></span></div><br />
</div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-29202207704516822892011-03-05T15:18:00.001+00:002011-03-05T16:06:30.038+00:00But can Alexander Technique HELP those with dystonia?<div dir="ltr" style="text-align: left;" trbidi="on"><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">In another section of this blog there is a post<a href="http://dystoniasupport.blogspot.com/search/label/Alexander%20technique"> about the Alexander Technique.</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">But what do others say about the use of the Alexander Technique and dystonia?</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">It is reasonable to conclude from <a href="http://community.wegohealth.com/group/dystonia/forum/topics/2028394:Topic:29484?commentId=2028394%3AComment%3A65981&groupId=2028394%3AGroup%3A1015">Annie's post</a> that Alexander Technique (AT) helped. She writes:</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i>"Annie: Age 27</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i>Spasmodic Torticollis</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i>Treatments: Klonopin, Ativan, Lyrica, Botox (every three months, but last treatment did nothing), acupuncture, Alexander Technique.</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i>Years Diagnosed: 1. I was diagnosed almost exactly one year ago, November 2008, I was lucky that my symptoms only started in October 2008.</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i><br />
</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i>So far,<b> I've seen about a 70% improvement in my range of motion</b>, but the pain has worsened"</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">A guitarist with <a href="http://www.focaldystonia.net/forum/viewtopic.php?f=3&t=3">focal dystonia writes:</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i>"As things stand I’m partially recovered. I took Alexander Technique lessons for three years and <u><b>found them a great help.</b></u> I no longer take lessons but continue to apply the principles"</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b>After watching this video:</b></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><object height="390" width="425"><param name="movie" value="http://www.youtube.com/v/nm3Ya1HRONI&hl=en_US&feature=player_embedded&version=3"></param><param name="allowFullScreen" value="true"></param><param name="allowScriptAccess" value="always"></param><embed src="http://www.youtube.com/v/nm3Ya1HRONI&hl=en_US&feature=player_embedded&version=3" type="application/x-shockwave-flash" allowfullscreen="true" allowScriptAccess="always" width="425" height="390"></embed></object></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://healthznews.com/a-night-of-cervical-dystonia.html">someone wrote</a>:</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i>"I have had dystonia for over15 years so can really relate. My friend is with me and I showed her your video and it helped her understand.<u><b>.I have found Alexander Technique helped me a lot!</b></u>"</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Also <a href="http://forum.saxontheweb.net/showthread.php?125624-Focal-Dystonia">from here:</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i>"I remember him mentioning that he has Focal Dystonia. He said he has been working with an Alexander Technique teacher and that<b><u> it had helped him</u></b> continue playing."</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b>What about research?</b> </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Well,<a href="http://cre.sagepub.com/content/16/7/695.abstract"> there's this....</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div id="p-1" style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b>Objective</b>: To determine whether the Alexander Technique, alongside normal treatment, is of benefit to people disabled by idiopathic Parkinson's disease. </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b>Design</b>: A randomized controlled trial with three groups, one receiving lessons in the Alexander Technique, another receiving massage and one with no additional intervention. Measures were taken pre and post-intervention, and at follow-up, six months later</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b>Results</b>: The Alexander Technique group improved compared with the no additional intervention group, pre-intervention to post-intervention</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b>Conclusions</b>: <u><b style="color: red;">There is evidence that lessons in the Alexander Technique are likely to lead to sustained benefit for people with Parkinson's disease</b></u>. </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Spasmodic torticollis/cervical dystonia certainly gives you a lot of pain.<a href="http://www.livestrong.com/article/144402-the-best-exercises-neck-shoulder-pain/"> This site </a>tells us:</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i>"The Alexander technique as a way of moving and thinking that eliminates the bad posture and movement habits that can lead to neck and shoulder pain. The Alexander technique teaches you to be aware of the sources of pain and the natural compression of muscles that occurs as the body tries to eliminate that pain. It emphasizes economy in movement to prevent jarring and straining actions, and body alignment to minimize the muscular strain that comes from holding the body in an unnatural position. Alexander technique lessons are low-impact and involve gentle hands-on instruction that helps you to release muscular tension and redevelop your natural poise."</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">This <a href="http://www.patient.co.uk/health/Torticollis.htm">torticollis site</a> says:</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i>"<b>A good posture may help.</b> Check that your sitting position at work or at the computer is not poor (that is, not with your head flexed forward with a stooped back). Sit upright. Yoga, pilates, and the <u><b>Alexander technique all improve neck posture,</b></u> but their value in treating neck pain is uncertain."</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">So - what next?</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Having Alexander Technique can be expensive!</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">The first thing you should/could do is read up about it. Learn what it involves. <a href="http://www.alexandertechnique.com/">Try starting here....</a> </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">You could read about it and/or <a href="http://www.alexandertechnique.com/bookshop/">watch dvds...</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">If you're in the UK here is <a href="http://www.alexandertechnique.com/teacher/gb/">how to find a teacher.</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Here is <a href="http://www.alexandertechnique.com/choose/">how to CHOOSE</a> a teacher.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span class="subtitle" style="font-size: small;"><b> Other Links:</b></span> </div><ul style="font-family: Arial,Helvetica,sans-serif;"><li><span style="font-size: small;"><a href="http://alexanderaudio.com/">AlexanderAudio.com</a> - Comprehensive collection of CDs, MP3s and RealAudio files related to the Technique<br />
</span> </li>
<li><span style="font-size: small;"><a href="http://bodylearningcast.com/">Body Learning</a> - Alexander Technique Podcast <br />
</span> </li>
<li><span style="font-size: small;"><a href="http://alexandervideo.net/">AlexanderVideo.net</a> - DVDs, VHS tapes and on-line Alexander Technique videos<br />
</span> </li>
<li><span style="font-size: small;"><a href="http://alexandertalk.com/">Alexander Talk</a> - Lighthearted, incisive conversations about the Alexander Technique <br />
</span> </li>
<li><span style="font-size: small;"><a href="http://marjoriebarstow.com/">Marjorie Barstow</a> - Links to a great many on-line videos of this master teacher of the Alexander Technique<br />
</span> </li>
<li><span style="font-size: small;"><a href="http://alexandertechniquesport.com/">eBooks and Books by Roy Palmer</a> - Ever-growing collection, wirh an emphasis on sports, many useful for self-study <br />
</span> </li>
<li><span style="font-size: small;"><a href="http://movewellavoidinjury.com/">Move Well, Avoid Injury - What Everyone Needs to Know About the Body</a> - DVD<br />
</span> </li>
<li><span style="font-size: small;"><a href="http://www.andoverpressonline.com/">Andover Road Press</a> - An independent publisher of Alexander Technique books<br />
</span> </li>
<li><span style="font-size: small;"><a href="http://mtpress.com/">Mornum Time Press</a> - An independent publisher of books for teachers and serious students of the Alexander Technique</span></li>
</ul><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">You could try <a href="http://www.alexandertechniqueoxford.co.uk/">emailing this person</a> who has experience with clients who have dystonia - but I am sure other teachers do have as well...</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">So - what does the above tell you?</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">1. According to some people with dystonia (especially cervical dystonia) there is a high chance the Alexander Technique will help you.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">2. You can learn about the Alexander Technique through dvds and books</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">3. You can find - via the links - Alexander Technique teachers in the UK - and also you can read HOW to select one.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">4. Notice also that teachers often reduce their rates for those on benefits etc.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> </span></div></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-24146778275356382222011-03-05T09:29:00.000+00:002011-03-05T09:29:59.640+00:00A message from Luke Harley<div dir="ltr" style="text-align: left;" trbidi="on"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg25jRW7xP_x8Zteh0aGKssSO3RZ9E6t4LHRbyYnrpJ9wsablFy4iXH6joqv4pS5DOuM7iKY8sjYAFgSru07i2_wNTHbm_8MqX_tFx4IxOHtTXANNVpY4rC5LxfozaAiDAICwfLxLvmcLz2/s1600/imaging.ashx.jpg" style="margin-left: 1em; margin-right: 1em;"></a><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;"><br />
</span><br />
<div class="frp-message-body" id="story" style="font-family: Arial,Helvetica,sans-serif; height: auto;"> <i><span style="font-size: small;"><span style="color: #444444;">Thanks for visiting this page. </span></span></i><br />
<i><span style="font-size: small;"><span style="color: #444444;">I am running the Brighton Marathon on the 10th April and the London Marathon on the 17th.</span></span></i><br />
<i><span style="font-size: small;"><span style="color: #444444;">I am running for the Dystonia Society. There is very little known about the condition of Dystonia and you may not have heard about it before.</span></span></i><br />
<i><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg25jRW7xP_x8Zteh0aGKssSO3RZ9E6t4LHRbyYnrpJ9wsablFy4iXH6joqv4pS5DOuM7iKY8sjYAFgSru07i2_wNTHbm_8MqX_tFx4IxOHtTXANNVpY4rC5LxfozaAiDAICwfLxLvmcLz2/s1600/imaging.ashx.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg25jRW7xP_x8Zteh0aGKssSO3RZ9E6t4LHRbyYnrpJ9wsablFy4iXH6joqv4pS5DOuM7iKY8sjYAFgSru07i2_wNTHbm_8MqX_tFx4IxOHtTXANNVpY4rC5LxfozaAiDAICwfLxLvmcLz2/s1600/imaging.ashx.jpg" /></a><span style="font-size: small;"><span style="color: navy;"><span style="color: navy;"><span style="color: #444444;">Over </span>70,000 people are currently living with Dystonia in the UK. </span></span></span></i><br />
<div style="line-height: 13.5pt;"><i><span style="font-size: small;"><span style="color: #444444;"><span style="color: #444444;">Dystonia is a condition that causes involuntary and uncontrollable muscle spasms. It can force the body into abnormal, painful, movements and postures. </span></span></span></i></div><div style="line-height: 13.5pt;"><i><span style="font-size: small;"><span style="color: #444444;"><span style="color: #444444;">Those affected with Dystonia are affected every day.</span></span></span></i></div><div style="line-height: 13.5pt;"><i><span style="font-size: small;"><span style="color: #444444;"> <div style="line-height: 13.5pt;"><span style="color: #444444;">Treatment is sporadic in effectiveness and sometimes does not work at all. Treatment is only temporary, the condition is incurable. </span></div><div style="line-height: 13.5pt;"><span style="color: #444444;"><span style="color: #444444;">There is no known cause, no known cure, no given time frames & anybody can be suddenly affected whatever their age, background, lifestyle. </span></span></div></span></span></i></div><div style="line-height: 13.5pt;"><i><span style="font-size: small;"><span style="color: #444444;"><span style="color: #444444;">The Dystonia Society aims to ensure that everyone affected has access to the most appropriate treatment, support and information they need to achieve the best possible quality of life whilst affected with this condition. </span></span></span></i></div><div style="line-height: 13.5pt;"><i><span style="font-size: small;"><span style="color: #444444;"></span><span style="color: #444444;"><span style="color: #444444;">Please give generously whatever you can afford to help.</span></span></span></i></div><div style="line-height: 13.5pt;"><i><span style="font-size: small;"><span style="color: #444444;"><span style="color: #444444;">Please also visit the websites and find out more about this often misdiagnosed condition.</span></span></span></i></div><i><span style="font-size: small;">Donating through JustGiving is simple, fast and totally secure. Your details are safe with JustGiving – they’ll never sell them on or send unwanted emails. Once you donate, they’ll send your money directly to the charity and make sure Gift Aid is reclaimed on every eligible donation by a UK taxpayer. So it’s the most efficient way to donate - I raise more, whilst saving time and cutting costs for the charity.</span></i><br />
<i><span style="font-size: small;">So please dig deep and donate now.</span></i><br />
<i><span style="font-size: small;">Thanks</span></i><br />
<div class="separator" style="clear: both; text-align: center;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg25jRW7xP_x8Zteh0aGKssSO3RZ9E6t4LHRbyYnrpJ9wsablFy4iXH6joqv4pS5DOuM7iKY8sjYAFgSru07i2_wNTHbm_8MqX_tFx4IxOHtTXANNVpY4rC5LxfozaAiDAICwfLxLvmcLz2/s1600/imaging.ashx.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><br />
</a></span></div><span style="font-size: small;">Luke"</span><br />
<br />
<a href="http://www.justgiving.com/LukeNathanHarley"><span style="font-size: small;">This is Luke's Justgiving page.</span></a><br />
<span style="font-size: small;"> </span><br />
<span style="font-size: small;"> </span><br />
</div></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-29701515409963810652011-03-01T23:36:00.000+00:002011-03-01T23:36:47.071+00:00A True Story About the Healing of Dystonia<div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">I was prompted to write this blog entry when I read a post by <a class="fn url" href="http://community.wegohealth.com/forum/topic/listForContributor?user=04c91bqofm5kf">asburyparkangel</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><a href="http://community.wegohealth.com/forum/topics/have-dystonia-im-seeking?commentId=2028394%3AComment%3A61419"><b><span style="font-size: small;">She writes:</span></b></a></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i>"According to my research, Dystonias are caused by toxins, (which include pesticides, carbon monoxide, anti-histamines, auto exhaust, chemicals in household products, etc). I worked with airplane glue and spray paint when I was in my twenties and never imagined that taking Chlor Trimetron allergy tablets as a yong woman would cause this disorder. I also had a mercury filling left in my mouth, ( from my foster-child years). Mercury is HIGHLY toxic and cause terrible damage to the body. Also check for LYME which is the GREAT imitator that imitates Lupus and a host of other ailments. Hair analysis are excellent to detect heavy metal. Mainstream doctors will not look into these procedure, but you life depends on it. Oral chelation and detoxifying through FAR saunas is crucial to rid the body of accumulated poisons. “DETOX or DIE” by Doctor Sherry Rogers is crucial reading to educate yourself about body poison load.</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i><br />
.NUTRA-Sweet & Splenda are highly toxic as well as high-fructose corn syrup in sodas & snacks. EDUCATE yourself. You’ll also have to eat only organic foods and pure spring and distilled water. Your whole lifestyle will have to be OVERHAULED. Do it of DIE! I pray you will profile and have divine health with this info I’ve applied to my life. God bless you!</i>"</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">This reminded me of a book review 5 years ago:</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">By John J. Heney<br />
ISBN 1-894263-56-1<br />
<br />
Collapsing in the shower early one morning in 1991, Ottawa journalist John Heney found himself unable to control his hands or legs, suddenly going into full-body spasms which would mount to dozens of these attacks per day. Within weeks he would find himself without work, direction or hope as the damage in his nervous system took hold.<br />
<br />
Misdiagnosis, malpractice and miscommunication would mean it would be up to him to discover what could be done about this baffling disorder, and how he could regain purpose, an income and personal independence while being left, as one doctor put it, with a "hideous and horrible way to have to live."<br />
<br />
The Thunder Within dares to challenge us about the way our society deals with healing, and how we often forget the value of teamwork, respect and joy in daily living. Deemed to have done "more for himself than the entire medical profession," Heney turned his background into a source of information, insight and teaching as he began to share with all manner of groups about the physics and spirit behind thought, intent, abilities, hope and inspiration.<br />
<br />
Hilarious at times, uplifting in its recommendations and candid in its revelations, The Thunder Within is being used in business instruction, in Scouting, and by doctors, patients, therapists, families and friends of the ill, and by Canada’s Department of National Defence. It has been featured at a Conference Board of Canada national seminar.<br />
<br />
Why? The Thunder Within touches us in places we know are there but which we often dare not speak of. The book reveals, by example, how much more can be found within each of us exactly where we are, no matter how small or large our role in life.<br />
<br />
The experience that made John Heney the "spiritual mechanic" by showing people the principles of fun, ease and joy in learning is now spreading its influence worldwide, and can be yours as a spectator, in a journey that is transforming the workplace, the role of medicine, and how we treat ourselves and others. <br />
"Persons in health care practice and policy-making, those suffering serious illness and disabilities, scientists concerned with matters of energy, parapsychologists and spiritual seekers can benefit from reading this exceptional book."<br />
<br />
L. Richard Batzler, Ph.D., Past President<br />
<br />
Spiritual Frontiers Fellowship International </span> </div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="color: red; font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">The book?</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> <br />
<br />
<img align="right" alt="The Thunder Within" height="194" hspace="6" src="http://www.johnheney.com/images/thunder.jpg" vspace="0" width="128" />“<strong>The Thunder Within</strong>” is John’s autobiographical description of his journey through the debilitating effects of what happened when his legacy of cerebral palsy suddenly collapsed to include the neurological and movement challenges of dystonia, ataxia and aphasia. ISBN: 1-894263-56-1<br />
<br />
<em>"Persons in health care practice and policy-making, those suffering serious illness and disabilities, scientists concerned with matters of energy, parapsychologists and spiritual seekers can benefit from reading this exceptional book."<br />
</em>~ L. Richard Batzler, PhD</span> </div><div align="justify" style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><em>"What a great book! Couldn't put it down last night, read until 12:30. The darn book wouldn't put me to sleep. Too interesting. I've read half of it already."</em></span> <span style="font-size: small;">~ A reader writes in about The Thunder Within</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> </span></div>Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-7809110686741272445.post-56103943383418362232011-03-01T22:58:00.002+00:002011-03-01T22:58:56.008+00:00Twitter and Dystonia<div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Famous people with dystonia can and should be followed like mad...They should be bombarded with emails from patients...to cme out as an entire group.. not piece by piece...</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
Here's a list from the c4d site :</span></div><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;"><br />
The following is a listing of artists/activitists with various forms of dystonia :<br />
<br />
Billy Mclaughlin- Focal dystonia ( Music )</span> <span style="font-family: Arial,Helvetica,sans-serif; font-size: small;"><br />
Glen Estrin - Muscians dystonia<br />
Leon Fleischer -focal dystonia ( Music )<br />
Debra Freidman - dystonia ( Music )<br />
Jason Solomon - focal dystonia ( Music )<br />
Scott Adams ( aka Dilbert ) Focal dystonia<br />
Diane Rehm ( NPR Host ) Dysphonia<br />
Robert F. Kennedy, Jr. ( Activist, Environmentalist ) Dysphonia<br />
—— Founder (United for Peace ) Dysphonia<br />
Jenny Craig ( Diet Guru ) OMD<br />
Lynn Johnston ( Cartoonist ) Focal Dystonia<br />
Rem Murray ( NHL Hockey Player ) ST<br />
Chip Hanauer ( Race Car Driver NASCAR ) Dysphonia<br />
Linda Thompson ( Music ) Dysphonia<br />
Johnny Bush ( Music ) Dysphonia<br />
Henry Austin ( Music ) Dysphonia-Focal Dystonia<br />
Martha Grimes ( Author ) Focal Dystonia<br />
Alison Young ( Music ) Focal Dystonia<br />
Reinhard Gerbel ( Music ) Focal Dystonia<br />
Derek Thompson ( UK Actor ) Dystonia<br />
William Roth ( Author, Disability Advocate ) Dystonia/DBS<br />
Opus Cartoonist ( Cervical dystonia )<br />
Julie Sheldon ( Author, Dancer UK ) Dystonia<br />
Christy Brwon ( Author UK ) Dystonia<br />
Mike Harris ( News Reporter, Journalist ) Dystonia</span>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-7809110686741272445.post-45730463956859331892011-03-01T22:52:00.001+00:002011-03-01T23:05:19.624+00:00Now here's an interesting idea worth following up!<div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">For the rest of the posts on this, <a href="http://community.wegohealth.com/group/dystonia/forum/topics/cure-for-dystonia-that-noone">go here....</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Been researching for a cure,not meds, for my wife's CD. </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Much written about two things being done at the JHO Institute for Minimally Invasive Neurosurgery in Pittsburg,PA. </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">1. If you have a condition where blood vessels cross and compress cranial nerves this could be causing your CD. Nerves for this condition are the spinal accessory nerve and upper cervical nerves. Moving the blood vessels causing this pressure relieve the pain and movement in many patients. </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">2. Reduced spinal cord canal by bony spurs or disc material might also be putting pressure on nerve roots. This Cervical Stenosis procedure might also help those with arm/neck problems . See the web site DrJho.com and make your own evaluation. </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">We sent our MRI film for evaluation last week. Hoping to hear back soon to see if she might have any of these conditions. She had fusion surgery 14 mos ago with no positive results from the pain or CD. Head turns left. Maybe the fusion surgery was not necessary and canals are still narrowed and/or she has compressing blood vessels that the neurosurgeon did not know how to look for. Operation was on the C3/4 and C4/5. Hope this might raise some questions to others and maybe the cause and effect for someone's CD. Noone mentions this as another avenue. I only read of denevreation,botox and DBS.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">From the <a href="http://www.drjho.com/" rel="nofollow">www.DrJHo.com</a> site :</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
Spasmodic torticollis is a condition of extreme neck muscle spasm in which the patient's head and neck become twisted in an unnatural manner. Spasmodic torticollis has been treated with microvascular decompression of the spinal accessory nerves, the upper cervical nerve roots, and/or the brainstem. Improvement of symptoms has been observed in most patients within a two year span following surgery. Surgical outcome has been excellent in 50% of patients, who show drastic alleviation of their symptoms. Of the remaining patients, 25% experienced significant improvement while the other 25% did not die.</span> </div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;">Fascinating - I hope I am doing a service by publicising the above - <a href="http://community.wegohealth.com/group/dystonia/forum/topics/cure-for-dystonia-that-noone">which came from here.</a></span>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-413227438516736082011-03-01T22:43:00.000+00:002011-03-01T22:43:39.416+00:00Questions to ask...<div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Here's an interesting <a href="http://community.wegohealth.com/forum/topics/reasearching-for-dystonia">post from elsewhere...</a>.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> I've been very occupied researching everything I can think of about DYSTONIA and other Neurologically-related conditions. I've read many of your responses on BEKAH"S thread about Dystonia treatments. I was so heartbroken about most of you getting little or NO relief from teh drugs the doctor prescribed. I think DRUGS are a DEAD end, honestly. We need to take MORE responsibility for our wellness, because the pharmaceutical industry is BIG business. they could CARE LESS. We need to take advantage of VAST amount of onformation from the internet.<br />
<br />
I have found a lot of excellent medical, natural health sites where my symptoms are improving little by little. I would also make a record of EVERYTHING significant that has affected you health in your WHOLE life.<br />
<br />
<b>QUESTIONS YOU SHOULD ASK ARE:</b><br />
1. Did my mother breast feed me as a baby?<br />
2. Did she have any allergies or take any drugs when I was in my womb.<br />
3. Infections as a child and young adult, ( I had chicken pox at 25 & that was the beginning of my struggle with bronchitis & pneumonia<br />
4. Was there mould & fungus in my house? as I was growing up and presently<br />
5. Antibiotic or steroid use as a child or adult.<br />
6. Use of chemicals or toxic substances (my dad was a sign painter & I breathed the paint varnishes & turpentine). My dad has nearly died several times & has had surgery because of using these toxic chemicals <br />
7. Mercury amalgam tooth fillings<br />
8 Regular use of artificial sweeteners, aspartame & sucralose<br />
9 Obesity<br />
9 Lack of exercise<br />
<br />
THESE are just a few of the things you should be asking yourself as these all contribute to numerological damage to the MYELIN sheath.<br />
<br />
Please look up these key word. You'll get closer to finding supplement that will give you some relief.<br />
<br />
Here is an amazing link<br />
<br />
<a href="http://www.evenbetternow.com/multiple-sclerosis.asp" rel="nofollow">http://www.evenbetternow.com/multiple-sclerosis.asp</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;">If you care to take responsibility for your healing of DYSTONIA, I'd give these links a good read!<br />
<br />
<a href="http://www.hdac.org/features/article.php?p_articleNumber=547" rel="nofollow" target="_blank">http://www.hdac.org/features/article.php?p_articleNumber=547</a><br />
<br />
<a href="http://www.cell.com/neuron/abstract/S0896-6273%2803%2900644-5" rel="nofollow" target="_blank">http://www.cell.com/neuron/abstract/S0896-6273%2803%2900644-5</a><br />
<br />
<br />
<a href="http://be.linkedin.com/pub/patrik-verstreken/12/363/5ab" rel="nofollow" target="_blank">http://be.linkedin.com/pub/patrik-verstreken/12/363/5ab</a><br />
<br />
<a href="http://www.nature.com/ncb/journal/v4/n5/full/ncb0502-e123.html" rel="nofollow" target="_blank">http://www.nature.com/ncb/journal/v4/n5/full/ncb0502-e123.html</a><br />
<br />
<a href="http://www.bioedonline.org/from-the-labs/article.cfm?art=242" rel="nofollow" target="_blank">http://www.bioedonline.org/from-the-labs/article.cfm?art=242</a> KISS & RUN</span>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-83327733584324378922011-03-01T22:38:00.000+00:002011-03-01T22:38:58.968+00:00Sex and Dystonia<div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">I read a<a href="http://community.wegohealth.com/group/dystonia/forum/topics/question-sex-dystonia-not"> post elsewhere....</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">I'll just quote sections...(read the whole post by clicking the link above)</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">"</span><span style="font-size: small;">Well first i have zero to very little of a sex life</span><span style="font-size: small;"> but there are a couple things i've been curious about since this dystonia stuff. it's hard for</span><span style="font-size: small;">me to say it's the dystonia because you have so many other elements at play</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">few things i have noticed and as i've said they can be from something else</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">1. difficulty with orgasm - this is not from medication</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">-could be from fear, insecurity, unconscious feelings about body etc</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">or is this something that does exits?</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">2. last one being it seems that erections are not an issue but they will go away during the act. now this could also go <span class="Apple-style-span">with the fact that my last girlfriend i was never comfortable with and all the other things at plat</span></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">or can it be something from dystonia?"</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">I thought it worthwhile posting some research:</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> </span><span style="font-size: small;"> </span></div><div style="color: red; font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">These three quotes should grab everyone's attention....anecdotal evidence suggests they're completely wrong though...</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> “The pathophysiology of the dystonias is largely unknown but increased acetylcholine (ACH), increased or decreased dopamine (DA), and decreased gamma-aminobutyric acid (GABA) functions in the basal ganglia are postulated (Stahl & Berger, 1982; Brennan et al., 1982).”<br />
<br />
<a href="http://www.thecompassionclub.org/library/movement.html">Source</a><br />
<br />
So, an increased ACH may cause dystonia.<br />
<br />
Treatment inhibits ACH:<br />
<br />
“Treatment of focal dystonia with BTX is designed to improve the patient’s posture and function and to relieve associated pain. As BTX-A has been studied most intensely and used most widely, this section outlines its structure, origin, and mechanism of action. <br />
<br />
The toxin inhibits release of acetylcholine (ACH), a neurotransmitter responsible for activation of muscle contraction. Administration of the toxin results in weakness in the injected muscle. Some nerve terminals are not affected by the toxin, allowing the injected dystonic muscle to contract, but with less force. This weakness allows for improved posture and function of the dystonic muscle(s). The degree of weakness depends on the dose, and the duration of weakness is further dependent on the serotype employed.“<br />
<br />
<a href="http://www.emedicine.com/neuro/topic585.htm">source</a><br />
<br />
"The neurotransmitter that causes the sexual message is acetlycholine (ACH). ACH also seems to control sexual behavior through its activity in the brain. For women, ACH is also a very important part of sexual function. With too little ACH, sexual activity goes down. ACH is involved in the buildup toward orgasm and the urethral and vaginal contractions that occur during orgasm.<br />
<br />
One way to safely and effectively enhance ACH levels in the body is to take supplements of choline (1,000 to 3,000 mg) and vitamin B5 (500 to 1,500 mg) so that the body will produce more ACH."<br />
<br />
<a href="http://www.mercola.com/2003/feb/22/anti_impotence.htm">Source</a><br />
<br />
So, in theory, those with dystonia should be sex fiends....and measures to reduce the dystonia effects.....may cause impotence . If erectile dysfunction is psychological (and it may not be...cholesterol, weight etc) then reading the above may be of help...</span> </div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-78360661896166160302011-03-01T12:17:00.000+00:002011-03-01T12:17:26.216+00:00Diagnosing Dystonia<div dir="ltr" style="text-align: left;" trbidi="on"><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">This originally appeared <a href="http://community.wegohealth.com/group/dystonia/forum/topics/to-ruleout-dystonia-or-make-a-1">here:</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;">DIAGNOSIS — <u>The diagnosis of dystonia is based mainly upon clinical features</u>, although the diagnostic laboratory can provide supportive evidence. In the absence of specific diagnostic tests, expert observation by a movement disorder specialist is suggested to confirm the diagnosis of dystonia in cases where there is <u>uncertainty or confusion</u>. Now, who's confusion ???<br />
<br />
Primary dystonia is separated from secondary dystonia by the absence of additional neurologic abnormalities and the lack of possible acquired cause such as the use or exposure to reglan or other medications.<br />
<br />
As noted earlier, the age and anatomic distribution of dystonia at onset are important clinical clues for diagnosis. Atypical presentations (eg, a child with onset of dystonia in the neck or face, or an adult with onset in the leg, or an adult who develops generalized dystonia) indicate the need to evaluate for an underlying cause.<br />
<br />
Laboratory testing in primary dystonia is of minimal usefulness, but essential in the evaluation of secondary dystonia, or dystonia with atypical features.<br />
<br />
Levodopa trial — Patients with focal or generalized dystonia of unknown etiology should have a trial of levodopa (eg, carbidopa-levodopa 25/100 mg three times daily) to <u>confirm or exclude the diagnosis</u> of dopa-responsive dystonia. This is DRD and why you are placed on a trial of it. It either works or doesnt in a matter of weeks, resolving symptoms.<br />
<br />
Genetic testing — In patients with early onset dystonia, or those with late onset who have an affected relative with early onset dystonia, DYT1 gene testing is indicated with appropriate genetic counseling.<br />
<br />
Molecular genetic testing is possible but NOT widely available for dopa-responsive dystonia (DYT5), myoclonus-dystonia (DYT11), rapid-onset dystonia-parkinsonism (DYT12), and deafness-dystonia-optic neuronopathy syndrome .<br />
<br />
Laboratory evaluation — The assessment of atypical and/or secondary dystonia is extensive . Laboratory evaluations and brain imaging should be obtained and appropriately directed. When there is clinical suspicion for secondary or heredodegenerative dystonia, we suggest obtaining the following studies:<br />
</span><br />
<ul style="text-align: left;"><li><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;"> CT or MRI of brain (basal ganglia calcifications or necrosis and other abnormalities)</span></li>
<li><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;"> Complete blood count</span></li>
<li><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;"> Electrolytes</span></li>
<li><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;"> Renal and liver function tests</span></li>
<li><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;"> Antinuclear antibodies</span></li>
<li><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;"> Ceruloplasmin, serum copper, and 24-hour urinary copper (for Wilson disease)</span></li>
<li><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;"> Erythrocyte sedimentation rate</span></li>
<li><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;"> Rapid plasma reagent</span></li>
</ul><div style="text-align: left;"> </div><br />
<br />
</div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-70989530233178132472011-03-01T09:04:00.001+00:002011-03-01T11:45:21.269+00:00Mobile phones and Dystonia<div dir="ltr" style="text-align: left;" trbidi="on"><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://community.wegohealth.com/group/dystonia/forum/topics/natural-therapies-for-dystonia">I read this post:</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><i><span style="font-size: small;">"Ellen just found this post question asking "A friend of mine has been suffering from Dystonia for the last 4 years. <u>Is it curable and is there anything he may do to lessen the pain and twitching</u> etc? Many thanks. " Another person with dystonia gave the following response :<br />
<br />
Avoid artificial sweeteners (nerve toxin),teflon cookware (nerve poison),non organic veg (pesticide residues),amalgam fillings (mercury poisoning),tuna,shark,swordfish (mercury poisoning),processed food (contains aspartame and MSG...nerve poisons),mobile phones (radiation to brain).</span><span style="font-size: small;"><br />
<br />
Eat organic free-range meats to metabolic type...saturated animal fats needed to nourish brain and nervous system.</span><span style="font-size: small;"><br />
<br />
Eat Organic free-range eggs...see above.</span><span style="font-size: small;"><br />
<br />
Eat organic veg."</span></i> </div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">So - avoid mobile phones. not because of positioning the phone between your neck and shoulder thus causing strain but because of 'radiation'.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Then I read the NYTimes and saw this:</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div class="separator" style="clear: both; font-family: Arial,Helvetica,sans-serif; text-align: center;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCjkK26Zd5YB1bfQiG6DvTMqcGnp5Zrrfm5RVOXUqAeAPKCjhqm9D84HkyQGZPXNCrKNsenHmmUJNxGundaKeMCHdA_cjZO09JqagO7-GxQZW-DA_hDI5eIRcJTwSMOOeNCoIcYqXM6cKa/s1600/23well_graphic-blog480-v2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="177" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCjkK26Zd5YB1bfQiG6DvTMqcGnp5Zrrfm5RVOXUqAeAPKCjhqm9D84HkyQGZPXNCrKNsenHmmUJNxGundaKeMCHdA_cjZO09JqagO7-GxQZW-DA_hDI5eIRcJTwSMOOeNCoIcYqXM6cKa/s320/23well_graphic-blog480-v2.jpg" width="320" /></a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">So...cell phones affect brain activity. The study, <a href="http://jama.ama-assn.org/content/305/8/808.abstract">published Wednesday in The Journal of the American Medical Association,</a> is among the first and largest to document that the weak radio-frequency signals from cellphones have the potential to alter brain activity.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Then I read <a href="http://www.rense.com/general41/rat.htm">elsewhere.... </a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><i><span style="font-size: small;">"</span></i><span style="font-size: small;"><i>A closer look at the cells within the brain revealed that exposed animals had "scattered and grouped dark neurons... often shrunken.. with loss of internal cell structures." These altered neurons were seen in all locations, but "especially the cortex, hippocampus and <b>basal ganglia</b></i><b>."</b></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">Then...</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><i><span style="font-size: small;">"The area of the brain that is believed to be most affected by dystonia is called the <b>basal ganglia</b>. The basal ganglia are a deep region of the brain that monitors the speed of movement and controls unwanted movements. The basal ganglia are responsible for sending signals to the muscles instructing them when to move and when to stop moving. For reasons we don’t yet understand, the basal ganglia’s instructions to the muscles become irregular and chaotic, resulting in the unwanted muscle movements and contractions."</span></i></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><b>(Source</b>: DMRF)</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">...and I started to wonder.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"></div><ul style="font-family: Arial,Helvetica,sans-serif;"><li><span style="font-size: small;">Cell phones and the brain (studies)</span></li>
<li><span style="font-size: small;">Dystonia and the brain (studies)</span></li>
</ul><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"> </span></div><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;"><b>Anyone ever studied dystonia and cell phones?</b></span></div>Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-7809110686741272445.post-38601620751436441942011-03-01T00:14:00.001+00:002011-03-01T08:34:06.177+00:00Clinical Trials<div dir="ltr" style="text-align: left;" trbidi="on"><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Just found <a href="http://clinicaltrials.gov/ct2/home">this site</a> detailing clinical trials. On this site you can find trials being carried out on dystonia - anywhere in the world.....have a look!</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Note: there are currently 123 trials being carried out on Dystonia. This site enables you to volunteer and/or monitor the trials.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">Empower yourself!</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div></div>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-7809110686741272445.post-54398249259961470182011-03-01T00:06:00.000+00:002011-03-01T00:06:21.548+00:00The Cure Dystonia Initiative<div dir="ltr" style="text-align: left;" trbidi="on"><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">"</span></div><h1 style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Cure Dystonia Initiative</span></h1><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><em>A New Approach to Accelerating Treatments</em><br />
<br />
The Dystonia Medical Research Foundation (DMRF) launched the Cure Dystonia Initiative (CDI) in May of 2006 to accelerate the development of more effective treatments for dystonia with the ultimate goal of finding a cure. Although remarkable progress has been made in unraveling the causes and mechanisms of the dystonias, the availability of effective treatments remains limited. It has become increasingly clear that a new initiative by the dystonia community is needed.<br />
<br />
The DMRF has eagerly embraced this challenge. In establishing the CDI as a not-for-profit program of the Foundation, we provide the strategic direction, resources, and business infrastructure to enter this new research phase.<br />
<br />
Before embarking upon this venture, the DMRF carefully researched the practices of other disease groups that have launched similar initiatives. We are learning from those that are blazing the trail and thus taking advantage of the experience they have gained. Armed with a sense of urgency and passion, many advocacy groups have made the strategic decision to fill the leadership void that exists in discovering cures for small diseases. To do so, these groups have essentially adopted a business approach to the development of therapies. Their first step was to enlist the help of individuals from the bio-pharmaceutical industry who possess the specialized talents and expertise to help plan and oversee therapeutic initiatives. In forming the CDI, we, too, have recruited the necessary professional experience, and we are modeling our efforts on the best practices within the newly emerging world of profit/non-profit partnerships."</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://www.dystonia-foundation.org/pages/cure_dystonia_initiative/3.php">Much more from here....</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Then <a href="http://www.dystonia-foundation.org/filebin/Morepdfs/DMRF%20Op%20Plan%202010.pdf">download this....</a></span> </div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">Extract:</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i><br />
</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i>"Support global collaboration in dystonia research through regular communications with U.S, European, Asian and other dystonia groups and researchers."</i></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="color: red;"><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;">OK so now the question is, how is the Cure Dystonia Initiative going in YOUR country and has the initiative thoroughly explored the various therapies (and occasionally cures) referred to on this blog and many other sites?</span></div><br />
</div>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-7809110686741272445.post-31611574964015882062011-02-28T23:18:00.000+00:002011-02-28T23:18:49.468+00:00Salacia Oblonga<div dir="ltr" style="text-align: left;" trbidi="on"><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">We start off with a comment:</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">" <i><a href="http://community.wegohealth.com/group/dystonia/forum/topics/2028394:Topic:25556?commentId=2028394%3AComment%3A26365&groupId=2028394%3AGroup%3A1015">I talked with</a> a personal training here in AZ who has worked with some people with ST and has had some positive results with using this in a tea form. By positive results I mean some pain relief and some relief from pulling.</i>" </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;"><br />
</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">Beka found out some more information...</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Info about the tea :<br />
Salacia Oblonga, is known as Saptarangi/Ponkoranti in India.<br />
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Salacia oblonga has a long tradition of use for thousands of years as an Indian Ayurvedic herb. A few studies have looked at the the effects of salacia oblonga in humans and the early results are <u>promising in terms of blood sugar control</u>. In Japan Salacia oblonga has been <u>sold as a food supplement</u> for several years. Salacia oblonga plant grows in limited regions of India and Sri Lanka, and it is not yet well known in the U.S.<br />
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A recent Nurtition Article :<br />
Nutrition. ;21 (7-8):848-54 15975493 (P,S,E,B) Effects of a nutritional supplement containing Salacia oblonga extract and insulinogenic amino acids on postprandial glycemia, insulinemia, and breath hydrogen responses in healthy adults.<br />
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Angela L Collene, Steven R Hertzler, Jennifer A Williams, Bryan W Wolf<br />
Department of Human Nutrition, College of Human Ecology, The Ohio State University, Columbus, Ohio, USA.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
OBJECTIVE: This study evaluated the postprandial glycemic, insulinemic, and breath hydrogen responses to a liquid nutritional product containing Salacia oblonga extract, an herbal alpha-glucosidase inhibitor, and two insulinogenic amino acids. METHODS: In a randomized, double-masked, crossover design, 43 healthy subjects were fed the following meals on separate days after overnight fasting: control (C; 480 mL of a study beverage containing 82 g of carbohydrate, 20 g of protein, and 14 g of fat), control plus 3.5 g each of phenylalanine and leucine (AA), control plus 1000 mg of S. oblonga extract (S), and control plus S and AA (SAA). Postprandially, fingerstick capillary plasma glucose and venous serum insulin levels were measured for 180 min, and breath hydrogen excretion was measured for 480 min. RESULTS: The baseline-adjusted peak glucose response was not different across meals. However, changes in plasma glucose areas under the curve (0 to 120 min and 0 to 180 min, respectively) compared with C were -9% and -11% for AA (P>0.05 each), -27% and -24% for S (P=0.035 and 0.137), and -27% and -29% for SAA (P<0.05 each). Changes in insulin areas under the curve were +5% and +5% for AA (P>0.05 each), -35% and -36% for S (P<0.001 each), and -6% and -7% for SAA (P>0.05 each). Breath hydrogen excretion was 60% greater (P<0.001) in the S-containing meals than in the C- and AA-containing meals and was associated with mild flatulence. </span> </div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">CONCLUSIONS: Salacia oblonga extract is a promising nutraceutical ingredient that decreased glycemia in this study. Supplementation with amino acids had no significant additional effect on glycemia.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;"><i>More information is needed....</i></span> <br />
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</div>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-7809110686741272445.post-6134798713110718922011-02-28T22:50:00.001+00:002011-02-28T23:49:41.666+00:00My son has dystonia and I have found a solution that works!<div dir="ltr" style="text-align: left;" trbidi="on"><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">The post first <a href="http://community.wegohealth.com/profiles/blogs/my-son-has-dystonia-and-i-have">appeared here</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">I have a son who is 14 and last summer (at 13 yrs old, July of 2009) he had his first episode of dystonia. At the time, we had no idea what was happening and after a myriad of tests (blood tests, spinal tap, cat-scan, MRI of his brain, trips to a child neurologist) I was still left with no answers. This first big "episode" gradually went away and he was fine for almost a year and then this April of 2010 he started to have these episodes again, where he would twist and contort, have a tilting of the head, twitches, and at it's worst curling of the hands and feet and not be able to speak. With a lot of rest, he would get better, but not completely. His face still had an uncontrollable twitch to the side.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Long story short, I found a man named Tom who looked at my son and said, "oh yea, he has dystonia". I was shocked. I had never heard of dystonia, had no idea what it was, couldn't understand why my pediatrician or a child neurologist couldn't diagnose this. I went home and did the research and feel confident in saying that my son has dystonia. We have no medical insurance right now so I can't take him to a Dr. to get that firm diagnosis, but as his mom, and from all I've read, he has all the characteristics and symptoms. Besides, after all the testing, prodding and unanswered questions of last summer, I don't have a lot of confidence in the medical community. And if indeed, my son does have dystonia, there aren't any solutions from the medical community anyway.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">So...what I want all mothers of children with dystonia to know and all sufferers of dystonia to know is that I have found something that is working for my son. The first time he took this product, he had a twitch in his face where he twisted his mouth and neck every 15 seconds or so. This had been going on for days. He took this product and I'm not kidding, within 5 minutes it started stopping and in 15 minutes it was completely gone. He takes this product now every day. He has had two other episodes since April of this year which unfortunately came on when he was sleeping, but he took a good dose, higher than his usual daily dose, the symptoms were completely gone in an hour's time.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Here's the link to the website:</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://www.lutimax.net/" rel="nofollow">http://www.lutimax.net/</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">I found this product because my son's piano teacher has a student who's dad has ALS (Lou Gherig's disease) He has been taking Lutimax for years and is finding huge relief and is still alive. Lutimax has been a literal miracle for my son. I cannot sit by and not tell other people suffering with Dystonia. If you have any questions or want to know more, please email me at vboyes@gmail.com. I will happily tell you our story. I don't make any money endorsing this product. I just whole heartedly believe in it and am so happy to have found a solution for my son</span></div><div style="font-family: Arial,Helvetica,sans-serif;"></div><div style="font-family: Arial,Helvetica,sans-serif;"></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">I hope visitors here research this!.</span><br />
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<a href="http://community.wegohealth.com/group/dystonia/forum/topics/lutimax-and-dystonia-possible?commentId=2028394%3AComment%3A98747&groupId=2028394%3AGroup%3A1015"><span style="font-size: small;">Read more...much much more....</span></a><br />
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</div>Unknownnoreply@blogger.com1tag:blogger.com,1999:blog-7809110686741272445.post-90291415735006106672011-02-28T19:47:00.000+00:002011-02-28T19:47:21.243+00:00Fitflops and dystonia<div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Surely not? No link....is there?</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Well, firstly here's the<a href="http://www.fitflop.com/womens/icat/womens/"> Fitflop site.</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">Nothing about dystonia there.</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">But elsewhere I read:</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><i><span style="font-size: small;">"I'm in Fitflop heaven. Having developed a nasty neurological condition - called a focal dystonia of the foot - earlier this year, I was resigned to a lifetime of being on heavy-duty medication.</span></i></div><div style="font-family: Arial,Helvetica,sans-serif;"><i><span style="font-size: small;">Then my trusted osteopath mentioned that a patient of his with arthritis had been able to walk without pain for the first time in many years after buying a pair of Fitflops.I hobbled off to John lewis to buy a pair, and a day later was striding out across the heath <b><u><span style="color: red;">as though I had nothing wrong with me. </span></u></b></span></i></div><div style="font-family: Arial,Helvetica,sans-serif;"><i><span style="font-size: small;">Fitflops have thousands of testimonials from customers who have been relieved of conditions ranging from plantar fasciitis to heel spurs with the help of the shoes. "</span></i></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://www.dailymail.co.uk/femail/article-1282736/LINDA-KELSEY-They-ugly-I-adore-Fitflops.html">Read more....</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">Something worth considering perhaps....?</span></b></div>Unknownnoreply@blogger.com2tag:blogger.com,1999:blog-7809110686741272445.post-36734903576377059932011-02-28T19:23:00.000+00:002011-02-28T19:23:13.669+00:00A request to all visitors here!<div dir="ltr" style="text-align: left;" trbidi="on"><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">A cure for dystonia has got to be found! At the very least people must be made aware of ways to reduce the symptoms.</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Check out <a href="http://dystoniasupport.blogspot.com/search/label/Dystonia%20research">this section of the site</a> - see the various 'treatments' mentioned. Research them. Talk to others about them. Speak to doctors. Speak to neurologists. Speak to 'dystonia organisations'. What has happened about Valtrex? What about G-Therapy? Is it simply anecdotal about dystonia and allergies? No scientific studies about acupuncture? Some practitioners seem to have astounding results. Who are they? Why are they successful? On symptom-relief how efficient is hypnosis? Is it available for free?</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Spend some time here looking round the blog - there's a lot here. Then spread the word. Keep on digging, asking questions, sharing ideas. Nothing is sold here (of course!) and there are several people who put up posts here. We're not competing with huge established organisations/charities.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><b><span style="font-family: Arial,Helvetica,sans-serif; font-size: small;">We simply want dystonia to go! </span></b><br />
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<div style="color: red; font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">Meanwhile, take a look at these videos...</span></b></div><br />
<iframe allowfullscreen="" frameborder="0" height="390" src="http://www.youtube.com/embed/qpd1BxUxn8E" title="YouTube video player" width="425"></iframe><br />
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<iframe allowfullscreen="" frameborder="0" height="390" src="http://www.youtube.com/embed/Hkl0iswb8y4" title="YouTube video player" width="425"></iframe><br />
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<iframe allowfullscreen="" frameborder="0" height="390" src="http://www.youtube.com/embed/b1yc6YnvrMs" title="YouTube video player" width="425"></iframe><br />
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<iframe allowfullscreen="" frameborder="0" height="390" src="http://www.youtube.com/embed/oL6Jh_Gz8GU" title="YouTube video player" width="425"></iframe><br />
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</div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-13501582866516956672011-02-28T18:33:00.000+00:002011-02-28T18:33:56.265+00:00American Dystonia Society<div dir="ltr" style="text-align: left;" trbidi="on"><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Just a reminder that dystonia knows no borders, no barriers. It can affect anyone - though the incidence of diagnosed dystonia does vary from country to country.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Internet access means you can read about dystonia in other countries.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Check out the <a href="http://www.dystonia.us/">American Dystonia Society</a>.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">Their Mission Statement is:</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">"<span class="medtext style2 style1"><i>American Dystonia Society (ADS) is dedicated to advancing Dystonia research by promoting patient advocacy and increasing public awareness of this debilitating disorder. Our top priority is to maximize delivery of donations and grants to fund Dystonia Research in order to realize a cure and develop more effective diagnosis/medication/treatment protocols for Dystonia. ADS is dedicated to improving the quality of life for a person living with Dystonia.</i> "</span></span></div><span class="medtext style2 style1"><br />
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</div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-31702582199336509502011-02-28T01:36:00.003+00:002011-02-28T01:36:43.350+00:00Treatment for Torticollis<div dir="ltr" style="text-align: left;" trbidi="on"><div dir="ltr" style="text-align: left;" trbidi="on"><br />
</div><iframe allowfullscreen="" frameborder="0" height="390" src="http://www.youtube.com/embed/0aeNjuUGvcs" title="YouTube video player" width="425"></iframe></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-90416430096893710852011-02-28T01:36:00.000+00:002011-02-28T01:36:08.786+00:00Dr Arthur Fan and Dystonia<div dir="ltr" style="text-align: left;" trbidi="on"><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://arthuryinfan.wordpress.com/category/testimonies-or-records/dystonia-or-chorea/">This website </a>may be of interest to readers here...</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Also this short video:</span></div><br />
<iframe allowfullscreen="" frameborder="0" height="390" src="http://www.youtube.com/embed/cOE19MfFStY" title="YouTube video player" width="425"></iframe></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-64576853551262639842011-02-28T01:13:00.001+00:002011-02-28T01:14:29.081+00:00Explaining Parkinson’s disease symptoms in a nutshell.<div dir="ltr" style="text-align: left;" trbidi="on"><div dir="ltr" style="text-align: left;" trbidi="on"><br />
</div><object height="390" width="425"><param name="movie" value="http://www.youtube.com/v/023vSLktek8&rel=0&hl=en_US&feature=player_embedded&version=3"></param><param name="allowFullScreen" value="true"></param><param name="allowScriptAccess" value="always"></param><embed src="http://www.youtube.com/v/023vSLktek8&rel=0&hl=en_US&feature=player_embedded&version=3" type="application/x-shockwave-flash" allowfullscreen="true" allowScriptAccess="always" width="425" height="390"></embed></object><br />
<div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Actor Michael J. Fox, US Attorney General Janet Reno, and Renowned musician Tony Hanks speak about how it is like living with a movement disorder. Innovative research is currently being conducted to lessen the painful effects of Dystonia, but more needs to be done. Getting more answers about Dystonia can possibly help uncover more about other movement disorders such Parkinson’s Disease. To learn more about Dystonia and how you can help go to www.dystonia-parkinsons.org</span></div></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-12797367859994903932011-02-28T01:02:00.000+00:002011-02-28T01:02:04.733+00:00Leader of the Starry Skies<div dir="ltr" style="text-align: left;" trbidi="on"><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">In June 2008, Cardiacs singer Tim Smith attended the last night of My Bloody Valentine's five-night comeback residency at the Roundhouse in London. After the gig, he went for a drink with a long-time friend and collaborator, former Levitation guitarist Bic Hayes, before heading off in the early hours to meet some other friends. He never arrived.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Smith, who has no memory of the night, suffered a heart attack that triggered a major stroke. A second stroke in hospital a few days later left him paralysed down one side of his body and unable to speak. Two years on, he remains chronically disabled in a neurological rehabilitation centre in Wiltshire.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">"Tim can't do anything except be hoisted from his bed into a wheelchair," says Hayes. "He also suffers from dystonia, which makes him go into spasms. He is such a great guy, and we wanted to see if we could help."</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://www.guardian.co.uk/music/2011/feb/03/cardiacs-tim-smith-stroke-tribute-album?INTCMP=SRCH">Read more....</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Leader of the Starry Skies, an album of the Cardiacs singer's songs covered by a host of independent-music luminaries from the last 20 years.</span></div><div style="font-family: Arial,Helvetica,sans-serif;"> </div><div style="font-family: Arial,Helvetica,sans-serif;"> <span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><em>Leader of the Starry Skies – A Tribute to Tim Smith is available <a href="http://thegenepool.co.uk/items/597.htm">for £10 from here...</a></em></span> </div></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-49257329861573636112011-02-28T00:53:00.001+00:002011-02-28T00:56:02.073+00:00Catch this film if you can: Special People<div dir="ltr" style="text-align: left;" trbidi="on"><div dir="ltr" style="text-align: left;" trbidi="on"><br />
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<div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Trailer:</span></div><br />
<iframe allowfullscreen="" frameborder="0" height="390" src="http://www.youtube.com/embed/HHT3Tmi_hQg" title="YouTube video player" width="425"></iframe><br />
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<div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">This is especially relevant to those with dystonia because of Sasha Hardway, a 22-year-old who looks like a Hollywood star, and who walks with a very chic stick. In Special People, Hardway plays one of four teenagers given drama lessons by a patronising film director, hoping to use them to revive his flagging career and failed romance. </span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Hardway, who grew up in Essex, was funding her graphic design degree with a bit of modelling. Sasha's dystonia, has required spinal surgery and a wheelchair. "My mum noticed that other children were running around and I was getting left out," she says. "So she put me in a rock and pop choir and I got into performing." Acting seemed closed off to her: "When I was younger, there weren't any disabled actors. You tried to compare yourself to people on TV and the only person I saw in a wheelchair was on Sesame Street."</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><iframe allowfullscreen="" frameborder="0" height="390" src="http://www.youtube.com/embed/Zw6mLK5ZZBA" title="YouTube video player" width="425"></iframe></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><a href="http://www.viewlondon.co.uk/cinemas/sasha-hardway-interview-feature-2593.html"><span style="font-size: small;">Interview with Sasha.</span></a></div></div>Unknownnoreply@blogger.com0tag:blogger.com,1999:blog-7809110686741272445.post-48139975159456071432011-02-28T00:35:00.000+00:002011-02-28T00:35:53.599+00:00Magnesium and dystonia<div dir="ltr" style="text-align: left;" trbidi="on"><div style="font-family: Arial,Helvetica,sans-serif;"><b><span style="font-size: small;">Using the words of others...</span></b></div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><br />
</span></div><div style="font-family: Arial,Helvetica,sans-serif;"><i><span style="font-size: small;">"I have lived with painful, continuous muscle contractions and spasms for over 25 years with no diagnosis and, until recently, minimal relief. Although I have no formal diagnosis, I suspect it may be a form of dystonia: left side specific muscle contractions centered most strongly in the area of the neck and upper back. Doctors are uncertain if the problem is a genuine dystonia in part because the contractions are not strong enough to cause the obvious changes in physique. <br />
A couple years ago, I discovered that relatively large doses of vitamin B-12 taken in timed release form provided me with a significant amount of muscle relaxation and relief. (Timed release seems to be essential, other forms of the vitamin offer no benefit.) Curious about this, I experimented a bit with other over-the-counter vitamins and minerals, ultimately discovering additional benefits by adding ordinary doses of calcium and magnesium. Six months ago I brought this to the attention of a neurologist and obtained a prescription for Klonopin, which, added to the above in a surprisingly low dose, successfully provided further improvement."</span></i></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://www.dystonia-support4u.com/viewthread.php?topic=8&thread=575">Source: here...</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><i><span style="font-size: small;">"</span><span style="font-size: small;">I have completed 3 1/2 weeks of an 8-week trial magnesium therapy (500-750 mg. daily) prescribed by my neurologist for my hemidystonia. It reduced the frequency of (but did not eliminate)some of the smaller intermittent cramps I was experiencing, and so far has had no effect on the larger spasms. Still, I feel there is improvement overall. Instead of my left foot seizing up & going rigid every 10 minutes, it does so every 20 minutes... that has to count for something."</span></i></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><a href="http://www.wemove.org/cgi-bin/ultimatebb.cgi?ubb=get_topic;f=16;t=000170;p=0">Source: here...</a></span></div><div style="font-family: Arial,Helvetica,sans-serif;"><br />
</div><div style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;">Google '<a href="http://www.google.co.uk/search?hl=&q=magnesium+dystonia&sourceid=navclient-ff&rlz=1B3GGGL_en-GBGB335GB420&ie=UTF-8">magnesium dystonia'</a> and you will find other posts from elsewhere......worth a look!</span></div><span style="font-family: Verdana,Helvetica,sans-serif; font-size: x-small;"> </span><br />
<span style="font-size: small;"><span style="font-family: Verdana,Helvetica,sans-serif;">Take a look <a href="http://olenska-dystonia.blogspot.com/2010/03/magnesium-deficiency-symptoms.html">at this blog....</a></span></span><br />
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</div>Unknownnoreply@blogger.com0